Wednesday, February 10th, 2010

For the last couple of days I've had a new pain (yeah, like I don't have enough already), this time, under my left tit: the larger, more droopy, more fibrocystic one of the two. It's a duller pain than "stitch" in your side, but this morning it was winding me and taking my breath away. On the outside, it feels like a nasty bruise to a rib. Now it's spread around to my back and is a nausea-inducing pain on the back of my ribcage, below my shoulder blade, that feels as if I've been punched there.

My lower back and neck both already ache so much that I'm having to prop myself up with a mountain of pillows, supports, inflatable neck cushion, etc. And I'm just tired, drowsy and listless.

Yesterday afternoon, my thigh muscles tightened into knots and ceased up again. My legs were reluctant to move, my knees became painful and sore and it felt as though my femurs had been replaced with rods of burning dry ice. This is nothing at all unusual: it comes and goes, but is a lot more frequent and painful in the UK. Usually it isn't a painful problem until I go outside in the cold though.

This is all on top of the near unbearable, constant pain in my hip.

Another problem I've had for a long time has been getting worse recently too. Back when I lived in the UK before, which started when I was a kid, but got much worse when I lived in Birmingham in the 80's and early 90's, was a pain in the palm of my left hand when it was cold that I can only describe as feeling like it's having the crucifiction nail driven through it. Never once had that problem in Tenerife, mind you.

Ever since I got back to the UK, this pain has constantly increased, along with the development of another new pain in my left wrist, arm and shoulder that I can only assume is carpel tunnel syndrome (it puzzles me why the left is more badly affected, when I am right handed, but I've given up trying to find logic in these ills.) Over the last few weeks, this has suddenly increased even more - it was already limiting my typing to 15 -30 minutes a day - and over the last few days, even when I'm not cold and not doing anything with that hand, the pain shoots and throbs right through it.

Now my right hand is starting to "complain" (with stiffness and aches) about excess mouse use.

In the last 24 hours, I've been making a concerted effort to avoid deliberately making my joints click when they feel tight, achy and as if swollen, since reading that it could make matters worse. I did it, almost involuntarily, because, although painful at the time, it did bring some relief. Instead, I try gently stretching the affected limb, but it has had the effect of making me feel all the more stiff, achy and decrepid. The only other help will be to take more warm showers.

Your Sensitivity Score: 81%

"You are an extremely sensitive person. You notice everything. You've probably been called overly sensitive before, and it's partially true. Highly sensitive people tend to be highly intelligent. And you just can't turn off that part of you."

So that's the reason, is it? Well, at least intelligence is a reasonable excuse. Oh yes, I've have been called overly sensitive more than once, like it was a bad thing, but even though I recognise that being so sensitive brings extra stress, I'd much rather be over sensitive than insensitive. I'd hate not to care either way, either about my own situation, or that of the rest of the world.

Are You Extremely Sensitive?

The whole world's gone nuts

image

When I was out on Friday (visiting a psychologist, ironically, but I do not infer that has anything to do with the overuse of the term NUTS herein), I popped into a health store for something to nibble for my lunch. Since my nearly vegan diet is short on protein, I like to get my daily NUTS.

This what I got. Look, I don't blame Neal's Yard, or even Holland & Barrett, because I'm sure this abomination is the sole responsibility of some anally-retentive, rule-obsessed, nannying "nutter" (pun intended, obviously) from the ever-present 'Elf and Safety Executive.

So, not only does this transparent package - you could see the NUTS before I ate them - have a title that mentions NUTS (on both sides), a list of ingredients that includes NUTS, an allergen information panel that mentions NUTS and a warning that small children can choke on NUTS ...

They still felt the need to add a 5th item: another warning that the product is packed in a factory where NUTS are handled. Well, I should bloody well hope so, or aren't these real cashew nuts?

All this repetition does is cause confusion. It's NUTS I tell you, NUTS!

My Hair Should Be Red

"You are a passionate person ... both in love and in life. You have many causes that are important to you. You can be very intense. You are very fiery. You speak up, and you don't mince words. You also have a very flamboyant personality. You love to show off. You are both eccentric and expressive. You like to share your unique point of view. You can become quite impassioned. So impassioned that you can seem a little overbearing."

What Color Hair Should You Have?

Tuesday, February 9th, 2010

The last few days, after going out (to my assessment appointment at the Pain Unit in Poole) on Friday, I've been suffering the usual level of post-exertional maliase, sore throat, swollen glands, feverishness, aches and pains.

On top of that, now the temperature has dropped again, the pain in my hip has become excruciating to the point that I just cannot get into any position in which it is comfortable for more than a couple of minutes or that allows me to properly think and function.

The exercises that the physiotherapist gave me to do last week (my appointment was on Wednesday), specifically for this hip problem, have served only to increase the pain 10 fold too. The sideways movement more than the other two. I shall persevere as it may help with diagnosis, but as we discussed at the appointment, it seems to indicate that the problem cannot be sciatica and is thus yet another part of the fibromyalgia. That also means it isn't treatable.

The only relief, as I've constantly maintained, is to get back to a warmer, drier climate. This pain, which I have 24/7/365 here, I only felt badly once every few months or so when there was really bad weather in Tenerife, otherwise it simply did not bother me at all. Now I'm permanently stuck with it and most of the time it's unbearable.

Now the rest of my joints - simply all of them, from knees, shoulders, elbows, ankles, wrists and every single one in my hands and feet - have come out in sympathy again and are painfully popping, clicking and banging away every time I move, stretch, etc.

Medical advice is that one should not deliberately make joints click, because the more you pop your joints the more you are introducing laxity and potential for injury, so it can make the situation worse, yet, I cannot keep them still, because it's an almost involuntary action to try to alliviate the pain and stiffening when they feel as though they are ceasing and swelling up. It's another no-win. It's another symptom I simply had never had in Tenerife.

This is not a joint problem due to lack of lubrication, so drugs, oils and supplements are not going to be much, if any, help. It requires exercise to strenghten them. And exercise is good for fibromyalgia, but it must be measured and balanced very, very carefully indeed so as not to cause further exhaustion or permanent damage with ME.

How I'm affected undoubtedly has to do with humidity and barometric pressure and has absolutely nothing to do with how cold I feel - often I can be sweating from head to foot with hot flushes - and putting on extra clothing or blankets only adds to the pain and does not help, but if the temperature of my environment drops below 20 degrees centigrade, then my pain elevates in the same way as it would if someone were to beat me from head to foot with a baseball bat.

Add to that today that I'm yawning, can hardly keep awake and can hardly sit up, because I am so exhausted - yet, I've had several nights of fairly decent, uninterrupted sleep - something almost unheard of. It makes no sense.

Post-Exertional Malaise and CFS

"Written questionnaires revealed that within 24 hours of the test, 85% of controls indicated full recovery, in contrast to 0 CFS patients. The remaining 15% of controls recovered within 48 hours of the test. In contrast, only 1 CFS patient recovered within 48 hours. Symptoms reported after the exercise test included fatigue, light-headedness, muscular/joint pain, cognitive dysfunction, headache, nausea, physical weakness, trembling/instability, insomnia, and sore throat/glands."

Post-Exertional Malaise and CFS

You Are a Life Blogger

Stating the bleeding obvious: "Your blog is the story of your life - a living diary. If it happens, you blog it. And you make it as entertaining as possible. You may be guilty of over-sharing a bit on your blog, but you can't help it. Your life is truly an open book. Or in this case, an open blog!"

What Kind of Blogger Are You?

Conscience-soothing falsities

"Next the statesmen will invent cheap lies, putting the blame upon the nation that is attacked, and every man will be glad of those conscience-soothing falsities, and will diligently study them, and refuse to examine any refutations of them; and thus he will by and by convince himself that the war is just, and will thank God for the better sleep he enjoys after this process of grotesque self-deception."

-- Mark Twain

Never stops being apt and timely, does it?

Your Greed Quotient: 19%

A low score to be proud of:

"You're anything but greedy. You're eager to share and give to others. For you, collecting material possessions is more trouble than it's worth!"

How Much Greed Do You Have?

How to stop biting my nails

"Still amazed it was that easy."


How I did it: I have a terrible admission to make, I probably started biting my nails when my first teeth came through and, give or take one or two occasions when I was able to stop temporarily - events which took time, difficulty, willpower and a lot of trickery such as false nails, nasty tasting fluids, etc. - I continued to gnaw away nervously, well into my 50's.

Yes, I know how awful bitten nails on an adult looks!

Then one day, whilst perusing Amazon.co.uk I spied a 79 pence MP3 entitled, "Stop Biting Your Skin And Nails Self Hypnosis" by Erick Brown Hypnotherapist

I'm a dreadful cynic: I don't even believe in hypnosis, but what the heck, I can afford to "waste" 79 pence and the 42 minutes to listen to it. So I did.

Hummm, yes, well.

I also have trouble with insomnia and falling asleep, but I've yet to hear all the way through the 42 minutes, because this puts me to sleep.

And, after two plays, despite mostly not hearing it (while conscious), I didn't bite my nails any more, I don't even want to bite my nails, I'm just not tempted to bite my nails: it's like I never did. I don't even need to be using any willpower to remain on target.

Don't ask me how this worked and don't ask me to believe it really did, but it just is. :)

Could be worth 79 pence (about a dollar and a quarter) to you too.


It took me 2 days.


It made me

Related Posts with Thumbnails